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Chapter: Paediatrics: Community child health

Paediatrics: Children with disabilities

This includes children with physical and/or learning disabilities.

Children with disabilities

 

This includes children with physical and/or learning disabilities. Multi-agency assessments including medical information and a management plan are required. A ‘key’ worker for these families should be identified in order to minimize disruption and co-ordinate care. Early Support is a national programme that has been developed to facilitate this process, and there is a wide range of information available for families and profes-sionals to access.

 

Many severely disabled children will also have a statement of special edu-cational needs Each child needs an individual educational plan to identify targets and a means of achieving them, which is regularly reviewed. Other agencies, including therapists and doctors, must ensure that health needs are also met. Therapy advice and targets are given to teachers and school support staff and are incorporated into the child’s daily curriculum.

 

The UK Children’s Act stipulates that children with disabilities may require additional services, including social care and respite for the family.

 

 

Particular issues for families

 

   Home adaptations

   Specialist equipment provision: standing frames, mobility, feeding, bathing, toileting

   Augmentative communication: signing, symbols, speech-aids, speech therapy

   Financial support: may be eligible for:

   Disability Living Allowance (not means tested)

·  Invalid Carer’s Allowance (dependent on income)

·  Mobility Allowance (related to level of physical and learning difficulty)

   Learning disabilities and challenging behaviours (common)

   Multiplicity of appointments

 

Lack of co-ordination of care

 

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