Cystic fibrosis: management (1)
The management of the child with CF requires close co-operation be-tween local hospitals and regional centres. Patients and their families gain much from expert clinics, and from other patients and their families. Effective management requires a multidisciplinary team approach, which should include:
· paediatric pulmonologist;
· nurse liaison or practitioner in CF;
· primary care team;
All patients with CF should have a thorough annual multisystem review. Table 9.1 summarizes the range of information that is needed. You will find following these parameters helpful when assessing progression, deteriora-tion, and need for supraregional referral for heart–lung transplantation.