Perinatal death
•
Extreme
prematurity (40%).
•
Congenital
abnormalities (30%).
•
RDS.
•
Sepsis.
•
Perinatal
asphyxia.
•
Pulmonary
hypoplasia.
•
Miscellaneous.
•
Take
photographs and mementos, e.g. footprints, according to parents’ wishes.
•
Inform
all relevant professionals, (e.g. GP, obstetrician).
•
Refer
to coroner (Procurator Fiscal in Scotland) if required. UK criteria are:
o
cause
of death unknown;
o
no
medical practitioner attended illness leading to death;
o
intraoperative
death or prior to recovering from anaesthetic;
o
suspicious
circumstances.
•
Explain
and offer post-mortem to parents. Possible benefits include:
o
determines
cause of death;
o
identifies
unknown comorbidities;
o
determines
degree of normality;
o
audits
clinical care;
o
research;
o
medical
education.
•
Unexpected/unexplained
death. As soon as possible consider (with consent!):
o
blood
for culture—save serum for possible later testing (iem);
o
throat,
eye, ear surface swabs for bacterial and viral culture;
o
suprapubic
aspiration (spa) of urine to be saved (iem);
o
axilla
skin biopsy for fibroblast culture (send in sterile saline).
•
Currently,
no neonatal organ or tissue is harvested for transplantation in UK.
•
If
able, issue completed death certificate to parent/guardian who is then
responsible for registering the death. In the UK there is a specific
certificate required for a neonatal death (i.e. <28 days old).
•
Offer
follow-up appointment with senior doctor at 4–6wks to discuss issues
surrounding death, post-mortem findings, bereavement.
Up to 70% of deaths on UK neonatal
units follow withholding or elec-tive withdrawal of life-sustaining treatment.
In UK the Royal College of Paediatrics and Child Health states that there are 5
situations when with-holding or withdrawal of life sustaining treatment may be
appropriate. Three are relevant to newborns and are summarized here:
•
No chance’: life-sustaining treatment simply
delays death without significant
alleviation of suffering, e.g. spinal muscular atrophy type 1.
•
‘No purpose’: although the baby may be able to
survive with treatment, the degree of
physical or mental impairment will be so great that there is no quality of
life, e.g. severe permanent brain injury after perinatal hypoxia.
•
‘An unbearable situation’: treatment is more than can be
borne by the baby and/or family when
the illness is progressive and irreversible, e.g. recurrent cardiopulmonary
resuscitation in an infant with irreversible and progressive cor pulmonale.
•
The
other two situations relating to ‘brain death’ and ‘permanent vegetative state’
cannot currently be diagnosed in the newborn.
Withholding or withdrawing
life-sustaining treatment must be first dis-cussed with the parents. Almost
always a joint decision can be made in the child’s best interests. Time, rather
than court proceedings, is usually the best approach, the latter being best
reserved for extreme situations.
Remember, withdrawal of
life-sustaining treatment does not equal with-drawing care:
•
If
possible, allow parents and family to say their good-byes, spend time alone
with baby, have appropriate religious services conducted.
•
Parents
may wish to be present at the time of withdrawal. Offer options of being
present or holding the child in a private quiet room during withdrawal or
afterwards.
•
Stop
all non-palliative infusions and remove all peripheral vascular lines and
gastric tubes. Clamp central lines and chest drains.
•
Switch
off all alarms/monitors.
•
If
ventilated, disconnect and remove ETT.
•
Dress
or swaddle infant and then allow parents to cuddle infant.
•
Give
parents/family space and privacy.
•
After
death undertake relevant tasks as outlined in b ‘After death’, above.
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